Madeleine was born October 2, 2011. Our dear sweet girl was diagnosed at 2 months old and in 15 short months joined the heavens on January 9, 2013 after 2 relapse incidents fighting for her life with a life-threatening Atypical Teratoid Rhabdoid Tumor, or AT/RT of the brain and spine. She is greatly missed and her spirit lives on in all the lives she profoundly changed. This is the journey of her courage and resilience, and that of our little family.
Friday, November 2, 2012
Quick Update
This morning's radiation #2 went fine, exactly as planned. However, her central line site looks infected - major bummer. We've been stuck for blood and site cultures, dressing and cap changes, and a 24-hr antibiotic infusion. Hopefully the insurance comes through for us and we can get home infusions over the weekend. If they can't, or if Madeleine develops a fever at any time, we have to be admitted. Praying this antibiotic works and prevents her from getting ill!!!!!
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