Posted to our ATRT support group
Our Madeleine, our sunshine, and now, our angel. For 13 of her 15 months of life she fought valiantly against the pineal tumor and won, though ATRT eventually metastasized through her spine, brain stem and abdomen. She earned her wings this morning (01.09.13) in her Daddy's and my arms peacefully after a long day's battle with intense seizures. Forever loved, truly missed, and thankful for God's mercy she is no longer suffering.
Madeleine was born October 2, 2011. Our dear sweet girl was diagnosed at 2 months old and in 15 short months joined the heavens on January 9, 2013 after 2 relapse incidents fighting for her life with a life-threatening Atypical Teratoid Rhabdoid Tumor, or AT/RT of the brain and spine. She is greatly missed and her spirit lives on in all the lives she profoundly changed. This is the journey of her courage and resilience, and that of our little family.
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