Tuesday, July 9, 2013

Big Sister's birthday, 4th of July, Life Goes On

How to begin....
I want to do an un-sad update. I don't know if that's possible. My perception is misconstrued. The other day I shared how and what Annalise prays for. What I interpreted as her heartache and missing her sister, many perceived as faithful. I don't know how long that lasts, or if it ever goes away. Perhaps the closer we get to reuniting with Madeleine, the less it will hurt and always be understood as pain.

Big Sister just had her 4th birthday. It was a lovely two days just the three of us and new experiences. Dolphins are her new favorite animals after a whole day at Sea World and seeing them up close and personal. Sometimes it's been difficult to give ourselves permission to be happy, to enjoy those moments. And then when we do, and our minds play cruel tricks on us: Annalise never got to have a birthday with Madeleine in it. Her third birthday was very important to us to spend alone time with her after so much time apart living at the hospital, we decided then it should just be the three of us. It hadn't occurred to us Madeleine would be in heaven for the fourth. Some things we can't help regret.

This Fourth of July had a special highlight: big sister finally has the confidence to swim on her own. She still hates the loud booms and noises from the fireworks, but a long day in the pool nonetheless. Last 4th of July Madeleine was home from the hospital just 3 weeks with clean MRI results, and to be honest, I can't remember for the life of me what we did that day. The only thing I do know: it was the only one we had with her.

6 months. Tomorrow (Tuesday)  it will be 6 months since we held her last. I wish it were longer than that. I want to look into the future, one day closer at a time, instead of looking back. Looking back included her in our arms, but looking back can quickly become a tangled web of pain, suffocating, despair. Up until now I have never experienced the painful sensations of suffocating: anxiety times 5. Perhaps like an allergic reaction. My throat constricts and nearly chokes me. 
I can only describe my own sorrow, though I know Sister misses her immensely as well. Just recently she woke up very early and refused to go back to bed. I turned on a soothing tv program so she could lay on the couch and relax, it must have been about 6:30 am. About 3 hours later (yes, I know, terrible of me) she exploded into a fit when I turned off the television. She cried and screamed at me, stomped her foot, and cried some more. Upon calming her down, she was finally able to tell me that "the baby channel helps me learn about my sister. My sister is a baby. I miss her Mommy, I want to talk to her. And never again! I can't talk to her ever again!" My heart breaks for her. Though I know she won't ever forget her.
This afternoon we went for a walk and met neighbors down the street, two little boys, 3 and a half and 20 months. It was really the first time I didn't mention Madeleine when thinking of her, watching that little guy walk around with wide legs and that completely adorable way only he can say his big brother's name. I smiled and went back down the street, reminding myself that Annalise is here, she needs me every day, I love her more than life itself and I must never put her aside in place of my grief. I still have one smart, sassy, beautiful little girl to be the very best mommy I can be to her.

Saturday, July 6, 2013

"We don't understand why God does what He does..."

To be completely honest, I hate this phrase. 

This world is so out of it, so disconnected, that "people" fail to realize... God did not create cancer. God did not choose for my child or any child to suffer. God did not "do" this to Madeleine.
People need to study history. Study how the civilization of people began to destroy themselves by the quest for power and independence. I am by no means a philosopher, historian, theologian, or the like. I am simply a mother, a cancer mother, who fought side by side day in and day out with faith and perseverance to save my child from death. And in the end, I did not fail; rather, my child was victorious. She received all the glories and peace and beauty of heaven. She is cured. She is without pain. She is an angel. Of course I miss her with every single ounce of my body and soul, but I know that God did not give her cancer. 

Tonight I am reminded of this as I pray for Talia Joy Castellano, a young girl who has become the face of childhood cancer. She is one of many that I pray will not die. For her and for selfish reasons, because I love her. I love who she is, her wisdom beyond her years, her thirst for life knowing it may be cut short. 
We don't know why God does what He does. But I think it's for the movement. Talia is as much a mountain-mover as Jessie Rees, or Avalanna Routh, or any other child bringing more and more people to awareness of this epidemic, to this movement we seek to make serious change, not unlike a woman's vote or racial equality. Children deserve to live and thrive; good parents deserve to be parents. This tragedy should not continue daily, should not be ignored, should be given the attention it deserves because it can be prevented. Just enough people have to care. 
Talia is fighting for her life tonight. I am praying for her. She can be found on Facebook (Angels for Talia), Instagram, you tube, etc. A simple google search and her story can be shared. Please pray for Talia's healing on this earth so she can continue her message for all children affected by and battling cancer. God forbid she become a true angel, her message carries far and wide and not without impact. God bless Talia Joy, Jessica Joy, Madeleine Sunshine.... 

Thursday, June 20, 2013

Blog Repost: Are you sick of all this Cancer Stuff?

I know I am!
Would I have chosen these cards for our family? Hell No!
Do I know in my heart that God is in control and has a plan for all of us? Absolutely.
Would I still give anything and everything (short of Annalise) to have Madeleine back, including my own life or her Daddy's? You bet your last dollar we would!

I feel privileged to have connected with yet another mother whose mission is to be an instrument in this movement for childhood cancer.

If you have the few minutes, please read her blog post. It says what so many of us are feeling or saying. http://nicolescobie.com/?p=339

I have never wanted pity for our family, just genuine support. I never knew, I wasn't AWARE of these evil monsters called childhood cancers until it struck Madeleine, I didn't know anybody who was or had faced this. I have made it my mission to enlighten those I come into contact with, because it's for her- all for Madeleine. Her life will not be forgotten about because she went to heaven.

Saturday, June 8, 2013

Dear Madeleine

I see your face, your big beautiful smile. I miss you so much!!! How God must have so much faith and love for me because I don't understand why this is our path. what I wouldn't give to go back and just be a regular family! and not have to worry about anything but loving you and takoing care of you.!! I miss you so much. I hate days like today. Started off on the wrong foot, whatever it is-it's all a mess. and all I want is YOU. nothing more, nothing less. and my heart weeps because you're gone. and I just want you here! I know it's not your job to save me. It's not your job to make me feel better. I'm the mommy, it's my job to just be your mommy and the best one I can be, to you and to sister. I didn't get that opportunity. I didn't get all the rewards from being a good mommy. Instead I got a broken heart!!! I just miss you so much. I don't want anyone or anything else, I just wish I could have you back, that you never left. Please God, take care of my baby/ Give her all my love!! I love you my Squishy, my Angel. My heart hurts every day for you. Today it's invading my face, my tears, my joy to be with family. It's so hard. I just miss you,