Madeleine's doing well, she took her morning nap after the stem cell "infusion;" that's more like what it really is than a transplant. Her transplant went as scheduled, nothing major, it looks like a blood transfusion. She's had a little bit of nausea and vomiting the last couple days but that's normal for chemo and she's sleeping it off mostly. Madeleine's vomiting is really not bad, maybe only twice especially compared to the 1st cycle, that was bad. That was so sick. She'll be on 24-hr monitoring though for blood pressure and heart rate mostly as a precaution. They're mostly looking for a reaction to the preservative which is actually making me extremely nauseous, I had to go outside a couple of times because it's overwhelming me. Its a very specific odor that emits from her breath and urine. It smells like freezer burned or fermented creamed corn that stinks. Jeff hardly notices it. I asked the nurses to keep an eye on her so I could get fresh air. We're exhausted, we were up at 7:30a and she didn't go back to sleep last night until almost 3am. She's having a little bit of trouble sleeping any real length of time today so hopefully she'll sleep all night tonight. I'm sure she'll get up one more time to nurse tonight and then turn in. Fingers crossed :)
Madeleine was born October 2, 2011. Our dear sweet girl was diagnosed at 2 months old and in 15 short months joined the heavens on January 9, 2013 after 2 relapse incidents fighting for her life with a life-threatening Atypical Teratoid Rhabdoid Tumor, or AT/RT of the brain and spine. She is greatly missed and her spirit lives on in all the lives she profoundly changed. This is the journey of her courage and resilience, and that of our little family.
she is a warrior, and you are mama angel
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