We are still in the ER. Madeleine has been admitted to the Children's Hospital at UCLA. She will be in pediatric ICU. We are currently waiting for them to schedule her MRI. She most definitely has the hydrocephalus we feared and eventually will need the surgery to place the shunt in her head to drain the fluid.
Unfortunately the neurosurgeon has identified a "mass" on the scan so they've ordered the MRI to determine if it's a tumor which they believe it is. After the Dr's review that likely tomorrow they'll determine whether to biopsy the mass or not, also if she has to undergo surgery to remove it or undergo chemotherapy and/or radiation. There are a lot of unknowns right now until they have the MRI. She will be under anesthesia for the MRI so they'll move quickly on whether to biopsy or remove the growth while she's under.
Jeff and I are keeping it together but we really can't speak well, its extremely difficult to understand why Madeleine has to endure all of this. I will keep you posted frequently its just very hard to have a conversation, text & email are better right now. Thx for understanding.
We need your prayers!!
Madeleine was born October 2, 2011. Our dear sweet girl was diagnosed at 2 months old and in 15 short months joined the heavens on January 9, 2013 after 2 relapse incidents fighting for her life with a life-threatening Atypical Teratoid Rhabdoid Tumor, or AT/RT of the brain and spine. She is greatly missed and her spirit lives on in all the lives she profoundly changed. This is the journey of her courage and resilience, and that of our little family.
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