The Latest & 5k Warrior Walk

This last week was sprinkled with good things happening.

- Madeleine is now weighing 7.5kg/16.75lbs!
- Her third tooth broke through and is coming in slowly
- Madeleine is transitioning from sitting to the floor (she was previously either sitting up well or falling over as in "timber" with no in between)
- Eating is getting better every day! She loves peas.

We ended up having our weekly clinic visit on Friday. Her labs have consistently been really good, so the Doc is changing her lab draws to our actual clinic visits to still keep an eye on her but we no longer require a home health nurse - great! one less thing. Jeff and I will also be meeting with Dr Davidson this upcoming week to discuss possibly prescribing new medications that would be a proactive approach to continuing warding off the ATRT disease. I'll post more on that when we find out and make a decision.

One more update:

I had previously posted that we got involved with the Don't Worry Be Happy Foundation to help with our family's costs/Madeleine's medical. The money raised from the t-shirt sales and direct donations to the Foundation go directly to the hospital. Our only caveat is we have to meet a minimum of 30 shirts sold before the money can go to the hospital. I'm asking anyone who has already purchased t-shirt(s) please send me a photo for our photo album and fundraising effort.

Next Sunday, August 26th the foundation is having a Warrior Walk, and we'll be going. I hope we can at least get to 30 shirts sold, that's really all I'm trying to achieve so the people who have already supported us in this foundation's effort won't be wasted. We appreciate everyone's support! Thank you!

sister Jordyn