Madeleine's condition is not improving as well as we had hoped. The ileus - slowed or stopped GI movement - is creating really bad belly distention. She looks like a watermelon with legs, it's terrible. Many of the nurses have told us they haven't seen it this bad before and we're worried about an internal rupture. The doctors are carefully managing the details of her lab work, urine output, volume intake and vitamin levels and we're now asking them to look at the broad strokes: her girth is up almost 5 cm in 5 days, 1.5cm just today, and her weight is now 8.9 kg when she was 7.2kg on Thursday. Her belly cannot get any bigger, the fluid and air are running out of places to go. We're also concerned that the hydrocephalus will present again by increased pressure in the brain as a result of the excess fluid from the brain not having a place to drain to, as her eyes are slightly bulging when she's awake.
We've laid hands on her and prayed for her bowels to begin moving and the pressure to decrease dramatically - please keep this prayer continuing!
Dear Veronica and Jeff,
ReplyDeleteWe believe in miracles and we are going to keep your baby girl lifted up in prayer!! Praying for His grace for your family too! From faraway in Budapest, Patricia
Thank you Patricia! God bless you around the world :)
DeletePraying for your sweet girl. <3
ReplyDeleteI can't even begin to know what you are going though......I am so Sorry and PRAY AND HOPE your Sweet little Madeline will come though this terrible sickness!!! No child should ever have to go though SOMETHING LIKE THIS!
ReplyDeleteMADELINE AND YOUR FAMILY ARE IN MY PRAYERS <3
Jeff and Veronica...
ReplyDeleteI continue to pray for Madeleine's health and strength in this journey. I envision her happy, healthy, and stong in God's name! You two are amazing parents. Thank you for the updates and sending you tons and tons of love and strength!