We came back to UCLA around 12:30 a.m. on Wednesday. Madeleine's pediatrician Dr. Shapiro came by the hospital about 9:00 to check on her and talk with us about how things have been going so far. Remember she was our doctor that initially asked so many specific questions about the size of Madeleine's head that tipped us off to Jeff research and discover her condition. She has been great through this whole process being very supportive to us. She was very pleased to witness how well Madeleine controls her neck sitting up and looking around and how she's actually meeting some of her milestones early! =) She's already clasping like prayer hands and really wants to roll over from her back: that will take some time because we never get time on the floor being at the hospital so far but even with her tubes connecting to her central line on her chest, she's trying to roll over those lines.
The best milestone she just reached this week: she can laugh :D I'll try to catch that on a video in the next couple days. It's absolutely adorable!
We also got to visit Annalise last night for the first time in 12 days :) We all missed her so much and she missed her baby sister and us. She's getting so tall! Her vocabulary has expanded leaps and bounds. She's been talking in full sentences and now with more topics. I'm so proud of her that she's really so intelligent and picks up so much around her from all us adults. We were ready to start her in school to be around more kids and that plan changed when Madeleine entered the hospital since preschool is a germ cesspool. We have to remember regularly that this journey is temporary and eventually our life will get back to normal, the hospital and sister being sick has become a temporary new normal.
Madeleine has a few tests today including her MRI and we might be able to go home today or Friday but it would be for just the weekend if we go. She has done so well this cycle and has recovered faster than we planned for; her cycle was "scheduled" to be over on February 11th. Considering that her oncologist has recommended that we begin cycle 2 next week rather than waiting. We look at it as that's 7 days sooner that she could be completely well again. We'll update again once we know the results of the MRI. Let's hope it's a game changer for the better! Much love to all <3
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