Tuesday, April 3, 2012

11 Days Down, 17 to go

Jumping on her bed
Cycle 3 thank goodness is relatively uneventful, chemo wise. We chart her progress, procedures, transfusions and medications through each cycle to identify her trends and comparisons (remember we're not working; this is my "project") and since March 22 there hasn't been a whole lot to chart! Mama is very happy about that :) Based on my conversation with the doctors this morning, her counts should be improving already over this week. I don't want to jinx the possibility of us going home before the 28 days are up...Let's just say it could happen sooner than we expect.

The best part of this cycle has been watching her be a happy baby ~ she's playing with her feet, studying every face that she sees, smiles and talking to her regular nursing staff and doctors, wanting to look out the window and jumping! She's literally jumping when holding her up, I call her rubber legs. :) Her physical therapist has been very happy with her development and progress despite her chemo treatments and lack of weight gain. 
Sitting up watching Daddy
She prefers to stand and sit up where she can see your face,  though since this last discharge she's much more comfortable playing on the floor or in her bed rolling from side to side and over. Madeleine has been learning how to take her pacifier out of her mouth and half of the time can put it back; she's also finding new toys with random things: the blood pressure cuff and the kidney basin. :) It seems like getting out of the hospital the last time really opened her eyes to so much of the world she doesn't want to miss anything and she's absorbing everyone and everything around her. This explains now why she didn't nap during the day the last time we were home. Madeleine is such a smart baby! 
So, without further adieu, recent pictures of our angel!




Fell asleep playing with chipon


Playing with BP cuff




Twinkle Toes





3 comments:

  1. this is such a heartwarming update. She is adorable and these pictures make me want to hug her. I bet its hard for you to stop loving on her...she is too cute. This age is such a wonderful time and its precious to see her behaving like a healthy child....now all you need is a tantrum or two. haha. God's love is great and Easter will be extra special for us all this year. Thank you Madeleine!

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  2. I'm so glad to hear things are going good...praying for you guys every day! Stay stong!!

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  3. oh...and she is so freaking adorable!!!

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