Friday will be 99 days Madeleine has been inpatient - doesn't that seem like an eternity? Considering she is just over 200 days old, it puts things into perspective.
Two days of chemo on Monday and Tuesday nights, two days of rest on Wednesday and Thursday, and about 90 minutes Friday morning for the stem cell transplant make up this week. Madeleine has been doing really well, so far so good with just a little nausea that an added medication can't handle. Thursday morning the new resident MD came on and with good intentions listened to me describe Madeleine's symptoms and increased both the dosage and frequency of the dose; it was just too much for her, she looked drowsy all day until the evening after we discussed it with the resident and the dosage was adjusted back downward. The added med is controlling the nausea and she's still eating very well. The day was spent just a little irritable and a very light sleeper. Hopefully the weekend will be quiet and uneventful.
Annalise has not been able to come visit this week. Although none of us around her are sick, she came down with a cold on Wednesday. Because the conditioning chemo is so tough and Madeleine becomes immunocompromised (her immune system is completely wiped out) the smallest bit of anything can introduce infections so we have to safeguard her, even if that means one of us. It sucks. Plain and simple. So hopefully next week Annalise will be well enough to come, but at that point Madeleine's counts will be much lower than they are now. If last cycle is any indication we should be heading home around May 9th to be home again all of us together. Keeping our fingers crossed.
When Madeleine's a big girl, she'll look back and realise how very, very strong she is. All the best to her and her family.
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