Our sweet angel had her 7 month birthday Wednesday!! I think most parents celebrate these monthly "birthdays" with their first child and every subsequent child usually gets a little lost in the lovely chaos of life. Just a few months ago we didn't know if we'd get to this day - but God has proven how great He is! and Madeleine is kickin butt and stealin hearts along the way! She's a rockstar in the heme/onc unit - everyone asks how she's doing right before they tell me "I hear she's doing great!" and these are nurses, doctors and staff that aren't taking care of her for the day. It makes us feel good that these we've entrusted to make her well care so much about her and many on a personal level.
Thursday is 9 days post chemo and Day+6 on the BMT schedule. All things considered she's doing pretty well. The nausea and vomiting is a delicate balancing act; Monday was fraught with some wretching and vomiting and by evening we changed the dosage again. Tuesday came and went without incident until evening and Wednesday was mixed in terms of frequency and volume of the vomiting. I know that any adult would be groaning over the inconsistency of medications and unpredictable vomiting and she handles it with such stride. She continues to keep her lovely smile for us and everyone who comes to see her, and she's playing and baby talking. She doesn't appear to be too inconvenienced by it all. As of Tuesday her counts are totally down and she got platelets.
And last Friday morning (4/27) she was sitting up all by herself!! Her physical therapist has been working with her to help her sit up but she's definitely Jeff's daughter - stubborn! As well as mine - she has to enjoy tummy time on her terms. So some days she sits up better than others on her own, but she definitely prefers to sit or stand (with support) more than lay on her belly and/or roll. We've started putting her in the corner of the plush chair to help give her support when she loses balance and this gives her the independence to play with her toys or read her books. She's even getting testy when she's on her back, so I have a feeling she'll be determined to sit up on her own consistently very soon :)
And last Friday morning (4/27) she was sitting up all by herself!! Her physical therapist has been working with her to help her sit up but she's definitely Jeff's daughter - stubborn! As well as mine - she has to enjoy tummy time on her terms. So some days she sits up better than others on her own, but she definitely prefers to sit or stand (with support) more than lay on her belly and/or roll. We've started putting her in the corner of the plush chair to help give her support when she loses balance and this gives her the independence to play with her toys or read her books. She's even getting testy when she's on her back, so I have a feeling she'll be determined to sit up on her own consistently very soon :)
she is adorable...who can't help but smile when you see her face. again thank you for sharing
ReplyDelete