What a full Thursday!!! But luckily everything came together beautifully for Madeleine's surgery, it was just the 18 hours leading up to it that were pretty tough on all of us.
Nighttime in the hospital just isn't what it used to be. Madeleine made it very clear she knew it wasn't home and her bed. She fought hard to stay awake most of the night after little power naps between people waking her. 4:30 am I was finally able to get her into the crib and lay down myself. By 8:45 we were heading to radiation. Thankfully we kicked up enough dust the day before that we got the call while she was under RT that the surgeons were ready for her (this was about 9:30). Awesome!! Even better was that our clinic nurse and the anesthesiologist elected to help us by transporting her while still under sedation through the tunnel back to the hospital and up to the surgery floor - so, so cool of them because they really didn't have to do that and it's very likely we could have lost that add-on spot if they hadn't. I turned her over about 10:00 (see how fast it happened!?) and grabbed a coffee to wait. Around 12:30-1ish we got the call she was moved to recovery and we spent over an hour with her in the PACU until the docs could confirm the line placement was not having any effects on her heart. They later came and explained that the end of the line is slightly deeper in the left atrium and that it will allow her to grow with the line, though at the same time they have to make sure the lung is safe and the line is not causing irregular heartbeats or bothering her in the least. Everything appears to be a-ok. She was released to the floor and then discharged by about 5pm. We hurried to pick up sister and go home to relax. Mama, Daddy & Madeleine are all exhausted, and poor Sister is a ball of energy!! It's a bit difficult for her to understand why she has to be gentle playing with Madeleine because she is likely sore across her entire chest area. They removed the double lumen from her right side and installed the port back on her left where the very first CVC was. So 7 surgeries in 11 months - our baby girl is amazing!
We still had to wake up for radiation Friday morning and they used the new port without any issue. I also got to see it when they removed the needle and it looks like nothing :)
This afternoon she has been playing more and chatting away so it's likely she's not experiencing any pain. It's raining today and most of the weekend so we'll spend most of it resting, recuperating, baking and watching movies in our jammies - these are the weekends memories are made of, spending quality time together as a family.
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