Thursday, May 10, 2012

Day 112 - latest update is good

Madeleine's  having a really great day; days like today make me realize in retrospect how icky she must have been feeling earlier in the week. That C.diff has been causing lots of gas pains in her belly and her feedings decreased because of it and she was cranky, though I can't blame her. She was also anemic. Now that she's had the medicine to treat the C.diff for two days and a blood transfusion this morning, she's in much better spirits, talking a lot more, feeding better, and sleeping better. 
I've kept forgetting to mention that she has put on weight! This is a pretty big deal because since her septic episode at the end of February, she struggled with gaining weight -in April she was measuring 85% percentile for her height and only 10% for her weight. She was tall and skinny through March and most of April. She's now back over 7kg (16 lbs!) gaining over 2 lbs in the last 2-3 weeks. And despite the conditioning chemo and stem cell transplants, her eyelashes and eyebrows are slowly starting to grow back :) 
Her kidney GFR test is scheduled for Friday (tomorrow) and if her counts are high enough, she could be discharged over the weekend and come back as outpatient for her audiogram scheduled for Monday afternoon. If all goes according to plan, she will begin her 5th & FINAL cycle of chemo/BMT on Thursday, May 24! On that schedule we will be home just in time for big sister's 3rd birthday. I think we can finally see the light at the end of the tunnel, the finish line, when we can start to put the stress behind us and move forward with a new awareness and continued care plan for Madeleine to continue growing up healthy and beautiful.

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